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Hospice Isle of Man is seeking the Manx public

We are marking 35 years of specialist palliative care on the Isle of Man in 2018 and feel it is timely to ask the Manx public for their views on what really matters to them about this important local service.

Whether people have direct experience of Hospice and its services or not, they are keen to understand people’s perceptions and awareness of the services it provides through the hospice co-ordinating hub in Douglas, through their drop in days around the Island or through the wide variety of other ways that people come into contact with Hospice.

Chief Executive of the charity, Anne Mills stresses that it is important to capture and understand what the public and people who use the service views are in order to be able to continually improve its services to the local community.

She added: “I would particularly encourage people who have not had a connection with Hospice to take just a few minutes to complete the questionnaire as everyone’s opinion really does matter. This is just one of the steps we take to reach out to our communities and I look forward to opportunities to engage with you personally as much as possible also. What matters to you really does matter to us.”

Simply complete the form below:

Whilst the digital versions of the questionnaire help to keep costs down, hard copies of the questionnaire are also available through Hospice itself or any of its seven retail outlets for anyone not able to access the questionnaire online.

Hospice’s Annual General Meeting

Our annual general meeting took place recently. Below is the link to the notice along with our Report and Consolidate Financial Statements for 2016.

AGM Notice 2017

Hospice Care Consolidated Accounts 2016

Children’s Hospice Week

HRH The Duchess of Cambridge has recorded a video message to celebrate and mark the beginning of Children’s Hospice Week. Children’s Hospice Week (22-28 May) is organised by the UK children’s palliative care charity Together for Short Lives.

Rebecca House is one of the charities joining The Duchess to mark Children’s Hospice Week 2017. The Duchess’s message and support will help us reach out to families caring for seriously ill children, so they know that help is at hand.

Rebecca House in Strang supports children with life-limiting conditions and their families, it is one of the UK’s specialist children’s palliative care and hospice services. The Duchess’s support will mean so much to children and families supported by Rebecca House – it will give them, and all the dedicated staff and volunteers a real boost.

The Duchess’s video message will be released on 22 May 2017, and can be viewed at Together for Short Lives’ websites www.togetherforshortlives.org.uk/royalfilm.

Rebecca House will be celebrating The Duchess’s support for Children’s Hospice Week by raising awareness around the island about the services they offer.

 

Anne Mills Chief Executive is delighted to be supporting Children’s Hospice Week and wants everyone to #UpTheVolume for Children’s Hospice Week. She said ‘’It is a special privilege to be able to continue to support vulnerable children and their families and Children’s Hospice Week marks this privileged position. Staff at Rebecca house are indeed a real lifeline and work together with children and their families to ensure they have access to the very best specialist care. This year marks the 10 year anniversary of Rebecca House and the people of the Isle of Man have yet again shown their very generous spirit by supporting those most in need. It is very humbling to see just how compassionate people can be in their efforts to support the children and families that are cared for by Rebecca House. Please continue to get involved and definitely #UpTheVolume for Children’s Hospice Week especially on Thursday when the team will be in Douglas town centre on the national celebration day.’’

 

The Duchess, as Royal Patron of East Anglia’s Children’s Hospices (EACH), talks about her personal experience of the incredible difference that children’s hospices and palliative care services can make for children and families, and asks everyone to join her this Children’s Hospice Week by shining a light on these lifeline services.

In an excerpt from the video, The Duchess says:

“Across the UK more than 49,000 children and young people have life-limiting conditions. For these families, having expert care and support is vital, and this is what children’s hospices provide. They deliver first class care in a safe environment that feels as close to home as possible, full of colour, warmth, love and support.”

“Today as we mark the beginning of Children’s Hospice Week – I hope you will join me in shining a light on the dedicated and inspirational staff and volunteers, and the lifeline services they provide for children and their families.”

“The work they do is extraordinary, and it really does make a world of difference.”

Welcoming The Duchess of Cambridge’s message of support, Barbara Gelb OBE, CEO for Together for Short Lives, the charity behind Children’s Hospice Week said:

“We are so thrilled that Her Royal Highness is supporting Children’s Hospice Week. The Duchess’s words, and her amazing support for Children’s Hospice Week since 2013, have been transformational, helping to raise awareness of the needs of seriously ill children and families and to show that help is at hand.

“Families coming to terms with the heart-breaking news that their child will die young often say that it is the most isolating time and they simply don’t know where to turn for help. That’s why the Duchess’s words are so poignant – it’s a clear message that help is available from the remarkable children’s hospice and palliative care services right across the UK. This support can make a world of difference for families.”

Children’s Hospice Week (22-28 May) is the UK’s only awareness and fundraising week for children with life-limiting conditions and their families, and the hospice and palliative care services that support them. Children’s hospice services are all charities and rely on the generosity of the public to deliver their lifeline care and support. This year Children’s Hospice Week will be turning up the volume on children’s palliative care to show what life is like for families caring for children with life-limiting conditions, and to amplify families’ voices. It’s also a call for support: these families don’t have time to wait to get the care and support they desperately need.

To find out more about Children’s Hospice Week visit the Rebecca House Children’s Hospice Facebook page or contact us on 01624 647434.

Dave McMullen’s walk in memory of his gran

Dave McMullen walked the TT course last Saturday in memory of his Gran, Gladys Poland, who died in Hospice this year and has rauised almost £1,400!!!

Dave said ‘’She did a grand job of being a loving mum, caring Gran and beautiful Great Gran. It’s now my turn to give something back to the people who made her comfortable and peaceful when Gran passed away. I’m really overwhelmed by people’s generosity and kind words – this truly means a lot so thank you. Please share and donate so families going through what we went through are supported. Hospice Isle of Man and their staff are true angels among us, so I ask again please give what you can’’.

If you’d like to sponsor Dave and add to his incredible total so far, here’s the link:

https://www.justgiving.com/fundraising/Dave-McMullen-helping-hospice

 

Childrens Hospice week – Turn up the volume

Our events and initiatives for Childrens Hospice week will be shared soon – so watch this space

#sunflowerselfieforhospice

Please send through your images of your sunflowers by this coming Friday and the best image gets a prize!.

For further information please ring Hospice’s Community Fundraiser Steven Downward on 647434 or email fundraising@hospice.org.im

 

 

A Compassionate and Charitable approach to Dying Matters Week – 8th May to 14th May 2017

Hospice Isle of Man is working closely with Cruse Bereavement Care Isle of Man and The End of Life Matters group on the Island during national Dying Matters week. This year the week will be from Monday 8th May through to Sunday 14th May 2017.

It is a simple message of ‘Advanced Care Planning’ or ‘Putting Your House in Order’ to have a plan ready for when you die.

Chief Executive of Hospice, Anne Mills said: “We don’t know when this is going to happen but we are asking people to think about dying and what it would take to put your house in order during this week.” “This ensures that you can set out your own wishes and help family members to know what you would like to happen when death occurs.”

Guidance leaflets will be available at Hospice, in their shops or warehouse, at Cruse’s offices during the UK week of Dying Matters. They are also in all GP practices and libraries around the Island.

The timing of this week of awareness has been brought even more to the fore with the recent news that Princes’ Harry and William are highlighting the need for emotional support following the death of their beloved mother, Princess Diana, 20 years ago this year.

It is recognised that there are many aspects to death, one is getting organised to help support loved ones be aware of their wishes, while the second is to consider that the people left behind receive the support they need to help them cope.

Hospice offers a wide range of psychological support for children and adults. This is available to all Hospice patients and their families. At Hospice the current referral route is via a health professional but this is changing soon so that people can refer themselves if they need help and support following the death of a loved one.

Help is also available from Cruse, which is a charity that provides advice, information and support to children, young people and adults who have been bereaved, no matter whenever or however the death occurred.

As the recent Prince Harry story has indicated mental health can be an issue linked to bereavement by saying that he sought counselling 20 years after his mother’s death. Hopefully his statement will help people understand that it is okay to seek help at any stage or to discuss Dying Matters prior to or post the death of a loved one.

Follow Hospice on Fabcebook at hospiceiom or Twitter hospiceiom; Cruse  www.cruseisleofman.org or  facebook.com/cruseiom or End of Life Group www.elmisleofman.org www.facebook.com/elmisleofman

Advanced Care Planning Leaflet

End of Life Matters (ELM

Colour Me Rainbow 2017

Lets paint the promenade!!

This will be our 4th year of Colour me Rainbow and we are delighted to be working again in partnership with the Douglas Carnival.

This years event will take place on Sunday 16th July 2017 starting at 2.30pm from the Castle Mona Arcade, Douglas promenade to the sea terminal.

Entry is £20 or £50 for a team of 3, which will include your T-shirt and sunglasses, plus a paint-bag for the post paint party in the Bottleneck car park, near the Sea Terminal.

The event is open to anyone over the age of 12 and anyone under the age of 16 will need to be accompanied by an adult.

To save on postage, we will arrange registration days where you can collect your T-shirt  and these dates will be sent out with a sponsor form prior to the event.

If you have any questions, please do not hesitate to contact the fundraising team at Hospice on 01624 647432.

This Declaration must be read by all participants before taking place in any Hospice Isle of Man event. It gives important information and is a key part of the Terms and Conditions of participation. Please read it carefully – once you have registered for the event it is assumed that you accept the below conditions.

“I hereby confirm that I am freely and voluntarily participating in this Hospice Isle of Man event. I understand and accept that taking part has inherent risks and that Hospice Isle of Man (“Event Organiser”) cannot warrant for my safety. In the absence of any negligence or other breach of duty by the Event Organiser, I understand that my participation is entirely at my own risk. I am aware that Hospice Isle of Man will not accept any responsibility for any injury, accident, loss or damage to personal effects through participation in this event. I confirm that I am not: a) suffering any serious medical condition or have recently undergone surgery. b) pregnant c) under the influence of alcohol or drugs”.

To obtain your tickets, please look at the options below or is you have any questions, please call Sharon Connor, Events Manager on 647432 or ring the Fundraising team on 647433.

You need to click the below link that will take you to the event website page.

Colour me Rainbow 2017 – you can still sign up on Sunday!

Why not Feel Good this Friday

As part of national volunteers week Hospice has organised their annual Feel Good Friday this week – 3rd March 2017. This lovely event will be held between 10am-1pm and we are celebrating our volunteers. So whether you are a volunteer at Hospice or its shops already or fancy finding out about volunteering at Hospice why not come up to Elaine’s Coffee shop.

If you can’t make this Friday but would like to find out about volunteering at Hospice please call Mary Dunne on 647445 or email mary.dunne@hospice.org.im

 

Limited Edition Dublin Crystal

Dont forget to purchase your 2016 limited edition Dublin Crystal from Hospice

Only £10