Posts belonging to Category Featured



TT Closures

TT Closures

Every year the Isle of Man comes to life and plays host to the legendary TT races. With road closures all over the Island, this does lead to a handful of our services at Hospice taking temporary closure, please see below for full closure details.

Hospice Boutique, Douglas-                           19th May–mid June (becomes TT pop up shop)

Hospice Shop, Ramsey-                                  Business as usual and open bank holidays

All other Hospice Shops &Warehouse –           Business as usual, closed bank holidays and Sundays

Lymphoedema –                                              1st – 10th June

Scholl Wellbeing Centre –                                4th – 10th June

Day Unit Reception –                                       4th – 10th June

Elaine’s Coffee Shop –                                     4th – 10th June

Ramsey Drop In –                                            4th – 10th June

Rebecca House –                                            4th – 10th June

The In Patient Unit will remain open throughout.

Jake’s 100 mile coastal walk

Jake’s 100 mile coastal walk

In 2009 Jake Hodgson sadly lost his Grandad to cancer and although he was only 4 years old at the time he has decided to raise some money for Rebecca House in his memory.

“I miss my Grandad so much and so wish he was still here to see my sister who he never got the chance to meet, or see us both grow up. Cancer and other terminal illnesses are such a horrible thing for anyone to have to experience, especially children, so I want to just do a little something to try and help.

In 2017 at the age of 12, myself, my Dad and a friend (Robbie Callister) walked the Millennium Way (a total of 28 miles).  It was tough, but I felt a great sense of satisfaction and achievement.  

My Dad mentioned that maybe one day we could do the 100 mile coastal walk, which really excited me.  But after having time to think about it, I thought I would actually like to attempt the walk over the course of a few days and also camp each night.  I then thought, “well if I am going to achieve this, then why not at the same time help raise some much needed money, to help other children/teenagers in their time of need”.  My Dad said this was a great idea and suggested I choose a local charity.  I thought, there is no better cause than our local children’s hospice (Rebecca House).”

If you would like to help Jake raise money for Rebecca House you can donate here.

Lord Michael Dobbs visiting Island in memory of his father

Walk4Eric

House of Cards author and House of Lords Member Lord Michael Dobbs of Wyle is visiting the Island in May to walk the Coastal Path in memory of his father Eric, whilst raising funds for Hospice Isle of Man.

Shortly after publishing House of Cards, Lord Dobbs’ father Eric died in the Hospice on the Isle of Man. Reflecting on his experience Lord Dobbs commented:

“The extraordinary carers there transformed his final weeks. He found peace, and suffered no pain. His last days were almost joyous.”

In order to thank the Hospice I’m planning to walk the coastal path of that beautiful island, then climb to Snaefell. The walk will cover 130 miles, over six days, and since I’ll be hitting seventy later this year and more used to sitting on my backside in the House of Lords, it’s a real challenge.  But what is life without a few blisters?

I’ve called it Walk4Eric but it’s really for those people who the Hospice still cares for.  I want them, and their families, to be helped in the way my father was.”

The walk begins on 10th May and spans Dying Matters Awareness Week, a week that provides an unparalleled opportunity to place the importance of talking about dying, death and bereavement firmly on the national agenda.

During his walk Lord Dobbs will be feeling most of the pain but you can share the effort and make a contribution by visiting his Just Giving page www.justgiving.com/fundraising/walk4eric

JustGiving is simple and secure. It will never sell your details or send unwanted emails. Your money will be sent directly to us and it will make a huge difference to the community on the Isle of Man.

A Royal Get Together

Lord Dobbs is also an accomplished and entertaining speaker, and will be  joining us on the evening of Saturday 19th May 2018 at our ‘A Royal Get Together’ event.

Click here to find out more.

April – Celebration Update

April – Celebration Update

This month we were joined at our monthly celebrations by the following people:

Elissa Morris

Elissa raised £3,725 for us by running the Manx Mountain Marathon on Saturday 31st March. The marathon was set over a gruelling 32 mile course and Elissa managed to complete it in 6hr 43min 9sec, coming 21st overall.

We would like to congratulate Elissa on this incredible performance and thank her and everyone who supported her by donating via her JustGiving page.

UCIM Business Studies students

Paige and Morgan represented their Business Studies – Event Management team who had raised £575 for us by hosting pastry sales, cake bakes and raffles for the 300 employees at Old Mutual.

They follow in the footsteps of many other UCIM students that have raised funds for us as part of this course over the years. We would like to thank all of these students, the staff at UCIM and the corporate partners for their continued support.

Jennie Costain & Vicky Ollier

Manx Gas staff recently achieved a three year milestone without a Lost Time Injury and were rewarded for their excellent Health and Safety records with a £1,000 donation to divide amongst charities. We are delighted to have been chosen by Manx Gas staff and are extremely grateful for the donation of £100.

Alexandra Slater

Alexandra Slater is a familiar face at Hospice, as one of our Young Ambassadors she works tirelessly to generate income and raise awareness of our services. On this occasion Alexandra performed in the ‘Shaken Not Stirred’ James Bond themed event at the Gaiety Theatre on the 15th April, and has several more events up her sleeve for the remainder of the year. So watch this space!

If you would like to find out how you can raise funds, host an event or support through Corporate Social Responsibility please contact us on fundraising@hospice.org.im or 647431.

 

The Gift Of Time

The Gift of Time

They say that the greatest gift you can give someone is your time because when you give your time you are giving a portion of your life that you will never get back.

In the case of Brenda Kneale, Manager of our Port Erin Hospice Shop, the time gifted really is insurmountable. Brenda first started volunteering in our Port St Mary shop in 1988 and has been a dedicated member of our volunteer workforce ever since.

As well as spending time on the shop floor, Brenda also makes outfits for Barbie dolls and sells them in the shop which has helped raise much additional income over the years.

By gifting us such a large amount of her time, Brenda has helped raise vital funds for Hospice that have enabled us to provide compassionate care for numerous patients with life limiting illness over the years. On behalf of those patients, their families and the staff at Hospice we would like to say a huge thank you to Brenda.

Whilst we can never repay Brenda for her 30 years of unwavering support, we could celebrate with her as she reached a milestone birthday recently and so we popped along with flowers and a cake. The other volunteers in the shop had also arranged a surprise ‘do’ in the evening, a testament to the friendships and social benefits that can come out of volunteering.

If you would like to make a difference like Brenda then join our next generation of shop volunteers today!

Contact our Volunteer Manager by emailing christine.chadwick@hospice.org.im  or calling 647445 for more information on how you can help out at one of our 7 shops or warehouse.

 

Patient Story > Lymphoedema – a journey, not an end

Patient Story > Lymphoedema – a journey, not an end

Having had a mastectomy and axillary node clearance in 2012, I was aware that it was distinctly possible that lymphoedema would develop in my right arm. I was monitored for the first year by Karen Taylor, the lymphoedema therapist at Hospice Isle of Man, and I received advice and education on how to care for my arm. This included exercises, massage and a light compression sleeve to wear whilst exercising. Avoiding cuts, scratches and stings which could lead to infection became second nature to me and my family.

Four years on, I actually began to hope that I might be lucky and avoid lymphoedema, but then it suddenly developed for no obvious reason. To say I was devastated is an understatement; I was more upset by the lymphoedema than I had been when I received my initial cancer diagnosis. Lymphoedema is not curable and can be life changing. I am an enthusiastic golfer, (albeit a late starter), and felt sure that a swollen hand and arm would signal the end of my golf. I like to wear jewellery, and this became impossible. Clothing was difficult too as garments had to cover my arm without being tight.

I knew exactly where help lay. I contacted the Lymphoedema Team at Hospice and they acted swiftly to begin treatment. It was immensely reassuring to be in capable hands, treated with skill and professionalism as well as being offered great sympathy and compassion. My arm was measured and its volume found to be 45% greater than the left, classified as severe.

Intensive treatment began with two weeks of multi-layered lymphoedema bandaging combined with thrice weekly manual lymphatic drainage. The result of this was dramatic and my arm was much reduced in size. I was then measured for a tight compression sleeve and glove which I wore 24/7 for eight weeks. I was treated weekly at Hospice with sessions on a Pulse Press Lymphflow Advance machine and an inflatable sleeve which sequentially, gently squeezes and forces lymph out of the arm. I continued with my own daily hour of exercise and massage at home, wearing my compression sleeve for most of the time.

Following my weeks of treatment, the lymphoedema in my arm reduced by two thirds. It was now just 17% and classed as mild! Time for a tear or two of happiness and hugs all round. Our combined efforts had produced such an improvement. I am so grateful to the team at Hospice for their care, support and friendship.

I will always have lymphoedema but it is so much improved that I doubt many people would notice. I still wear a compression sleeve every day as a precaution against lymphoedema recurring and I also exercise my arm daily. However I can comfortably leave the sleeve off for a few hours if I am going out and my jewellery now fits. Best of all, I recently played in my first golf completion for two years and to my, and everyone’s surprise, managed to win two prizes! Take heart, you can fight back against lymphoedema!

Anne Mills, CEO, Blog April 2018

Mighty Oaks From Little Acorns Grow

It was back in the 1980s when Nadene Crowther first approached the National Society for Cancer Relief regarding the establishment of a Hospice Care service on the Island. Hospice Isle of Man was established in 1983 and 35 years on I feel honoured to continue to drive Nadene’s vision for the provision of care for people as they approach the end of their lives.

‘The oak has for centuries been a national symbol of strength, morale and knowledge’

The oak tree has been a symbolic part of our journey over the 35 years, from the grand tree that shaded the entrance to our previous residence at St Bridget’s, to ‘The Mighty Oak Appeal’ that enabled us to build our current home – neighbouring the Millennium Oakwood.  And just like the oak, over time Hospice has become a source of strength, morale and knowledge on the Island. Our services have developed significantly and we are now an integral part of and leader in the provision of Specialist Palliative Care for the terminally ill on the Isle of Man.

However, we wouldn’t be where we are today without the generous support and commitment that our community has provided over the years. That is why in our 35th year we are reaching out to say thank you. Thank you for the financial support, thank you for the value in kind donations, thank you for your gifts of time, thank you for shopping with us, thank you for engaging with us, thank you for attending our events and thank you for educating people about our services.

Over the last couple of months you may have seen us out and about in the community carrying out some market research. We have been asking people ‘What Matters To You?’, and I have been blown away by the levels of engagement and interest. We have had an overwhelming number of positive comments about the work that we provide and some really valuable suggestions for ways in which we can develop in the future. We are working through your suggestions and will be incorporating them into our new strategy, I look forward to sharing this with you when we launch in the Autumn.

‘As common oaks mature they form a broad and spreading crown with sturdy branches beneath’

Our patients are at the centre of all that we do and I believe that we have established an excellent range of services that really meet their emotional, physical, social and spiritual needs. Hospice is more than just a building or ‘a place to die’ and 2018 is about us sharing our philosophy with you by opening our doors and telling you stories that span the breadth of these services. By the end of this year we want each of you to appreciate the value of the therapeutic care offered at our Scholl Wellbeing Centre, to understand how our Hospice at Home team provide care and support out in the community and to know what bereavement services we offer within Hospice and Rebecca House, and that’s just the tip of the iceberg.

“Their open canopy enables light to penetrate through to the woodland floor, allowing bluebells and primroses to grow below”

As well as providing direct patient support we are also leading the way in Specialist Palliative Care Education on the Island and have some exciting announcements coming up later in the year regarding projects that are going to enable us to extend our educative reach even further. So watch this space!

 

 

 

 

Dying Matters Awareness Week 14-20 May

Dying Matters – What Can You Do?

Every year in May, Dying Matters host an awareness week, which gives us an unparalleled opportunity to place the importance of talking about dying, death and bereavement firmly on the national agenda. This year, the week will run from 14th to the 20th of May and Hospice will be sharing their campaign in asking “What Can You Do… in your community?”

The aim of this campaign is to raise public awareness about the importance of talking more openly about dying, death and bereavement and of making your wishes known.

As it stands, we are not having enough of these conversations…

  • Just 35% of adults said they had made a will
  • Just 30% had let someone know their funeral wishes
  • Just 7% had written down wishes or preferences about the care they would want if they couldn’t make decisions
  • Just 25% had asked a family member about their end of life wishes
  • Just 33% registered to be an organ donor

Dying Matters has a wealth of downloadable resources that can help you start to have some of these conversations, you can download them all here.

We also have the following Hospice documents available to download

Preparing for the Death Leaflet

End of life guidance – 2016

During Dying Matters Awareness Week we will also be hosting our ‘A Royal Get Together’ event, welcoming Lord Michael Dobbs to the Island as he embarks on his Walk4Eric fundraising campaign and re-launching Derek Winterbottom’s book ‘Our Island Hospice 1983-2016’.  The book will be on sale in of our shops, warehouse and various book shops and coffee shops around the Island. It retails at £10 and 100% of the income will go directly towards providing patient care here at Hospice.

 

 

Shaken, Not Stirred

Shaken, Not Stirred – Sunday 15th April 7pm

This will be a fantastic evening with some very talented performers including Alexandra Slater who is our Hospice Young Ambassador.

Get your tickets from quickly click here as they will sell out fast.

All proceeds to go to Hospice Isle of Man and Douglas Youth Band.

Christmas tree recycling initiative raises over £5,500!!

Thank you to everyone who registered to have their Christmas tree collected and recycled over the weekend.

We are pleased to announce this initiative raised over £5,500 which is amazing and totally smashed the total from last year!

 

Big thanks must go to the volunteers from the Isle of Man Post Office, who kindly gave up their weekend to help collect the 506 trees and to Tels Ltd at Snugborough Trading Estate for allowing us to use their facilities and for shredding the trees to turn into compost. Ballaneven Compost Ltd also opened up so that our volunteers from the North could drop off and these trees too will be turned into compost for our beautiful gardens here at Hospice.

Great community spirit and we look forward to doing it all again next year!!