ECHO Participant registration

Data Protection and personal data:

The collection of information from individuals whether online or manually is likely to be personal data as defined by the Data Protection Act 1998 (DPA) and the new GDPR regulations of May 2018. If you wish to participate in any way in Project ECHO, ECHO sessions attendance and specialty information is required by UNMHSC* in the United States.

*Project ECHO has been developed and is owned by the University of New Mexico (UNM), the rights to which have been assigned or licensed to the University of New Mexico Health Sciences Centre (UNMHSC).

What personal data will be stored?

Your name, the organisation you belong to and the ECHO sessions you attend will be stored.

Project ECHO sessions are also recorded.

Where will your data be stored?

Project ECHO communities track their growth and activities within the iECHO database which is hosted, monitored and measured by UNMHSC. Your personal data as identified above will be stored securely by Hospice Isle of Man (Access to the data is strictly limited and password protected). The data is *pseudonymised before being storing separately in the iECHO database.

*Identifying fields are replaced with artificial identifiers

Project ECHO recorded sessions are secured in a repository in line with the new GDPR regulations. Access to this repository will be granted at an individual level by Hospice IOM.

How will your data be used in?

iECHO data is combined and measured in various ways for analysis. It may be used for reporting to funding and governmental entities, for research related to the movement, for data quality assurance activities and in decision making related to new initiatives. Hospice Isle of Man will not use your data for any other purposes.

Recorded sessions will be made available to session attendees and/ or other Healthcare professionals with an interest in the subject matter. Access to this repository will be granted at an individual level.

Accuracy, Access & Retention:

Hospice Isle of Man have a responsibility for ensuring data stored is accurate. Upon request, your HUB can provide details of your stored personal data. Hospice Isle of Man has a published records management policy and your personal data can be removed at your request as defined in the records management policy. All requests will be dealt with in one month from receipt to processing.*

*This can be extended by a further 2 months if the request is complex or a number of requests have been received from the individual.

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We will always treat your personal details with the utmost care and will never send them to other companies for marketing purposes. 

We have a Data Processing agreement in place with Mailchimp who facilitate the creation and distribution of our e-newsletters. Mailchimp also take your privacy extremely seriously, and never sell lists or email addresses.

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